The International Federation of Associations of People Affected by Chagas disease (FINDECHAGAS) has launched an online petition in support of the official declaration of April 14th as their World Day. This proposal will be tabled at the 72nd World Health Assembly, to be held in Geneva at the end of May 2019. The particular date has been chosen because on that same day, 110 years ago, the Brazilian doctor Carlos Chagas confirmed the first case of the disease in a child, called Berenice Soares.
The official recognition of this anniversary in the global calendar of World Days will raise the visibility of this global health challenge, which forms part of the list of neglected tropical diseases, according to the classification of the World Health Organization (WHO). FINDECHAGAS aims to engage governments and health decision makers to encourage them to take sustainable political actions in order to overcome numerous barriers regarding access to diagnosis and treatment, as well as to increase visibility and awareness about the stigmatization and discrimination suffered by people affected by the disease.
On behalf of the current board of FINDECHAGAS, Elivra Hernández, (from the Mexican Association of People Affected by Chagas disease, AMEPACH), expressed today, from her home town of Veracruz that: “Most of the people living with Chagas have been ignored and invisible to the rest or the world, ever since the discovery of this disease”.
In order to understand the scope and magnitude of this challenge - around eight million people suffer from Chagas disease, mainly in Latin America, but also in other regions of the world, such as the United States, Canada, Europe and the Western Pacific. It is estimated that 65 million people are also at risk of Chagas disease. Furthermore, the majority of patients have no access to diagnosis and comprehensive treatment in each phase of the disease.
“After more than one century of neglect, now is this is the time to put an end to the obscurity surrounding the people affected by Chagas disease. A World Day means an opportunity to stand up and take the word. We have a lot to speak about. This is the time to hear our voice. We request the support of all the people to sign the petition to declare April 14th as the World Day of the people affected by Chagas disease. In addition, we ask governments for their support to our request at the World Health Assembly”, stated Elvira Hernández, from FINDECHAGAS.
Sign the World Day petition here.